Sun shower - Insufficient of Vitamin D

Hasil test darah keluar.
Dan salah satu hasilnya adalah Insufficient of vitamin D.

What??? Unexpected result untuk bagian itu.
Rasanya setengah tahun ini aku sudah menambahkan multivitamin dalam keseharian, termasuk juga mengatur makanan.

Hmmm... Apakah mungkin efek selama dua bulan ini diriku yang sudah seperti kelelawar jarang keluar saat pagi maupun siang hari? Kalo tidak terpaksa untuk pergi jemput Josh dan antar Josh ke tmpt les, aku akan berada didalam rumah.

Setelah kucari tahu, yang paling efektif memang meet with the "sun" dan jam yang paling tepat adalah di atas jam 10 siang dan sampai jam 3 sore. Yakni dimana bayanganku lebih pendek dari tubuhku.

Dimulailah kegiatan Sun Shower ku.
Hmmm andai ini di pantai, sayangnya di halaman rumah.
Sayang juga menyiram tanaman, karena waktu demikian air cepat menguap, jadi seperti membuang air.
Anyway, semoga terus bertahan...

Oh... Jangan heran kalo setelah berbulan tak bertemu aku akan lebih "tan" lagi after meeting the sun. Xixixixi

To Wait in Hope - Penantian dalam Pengharapan

Hampir dua bulan saya tidak menuliskan apapun didalam blog ini, karena waktu diprioritaskan untuk hal yang lain.

Hari ini aku ingin menuliskan bagaimana keluarga kami penantian dalam pengharapan.
Bulan April lalu ketika tahu saya sudah telat periode, test pack menunjukkan 2 garis walaupun satunya samar. Wah senang sekali rasanya. Saya bertanya-tanya, Tuhan apakah ini jawaban atas doa permohonan dan janjiku?

Tunggu menunggu sampai harap cemas, rambut banyak rontok, jerawat muncul, hingga mual-mual.
Hmmm rasanya ini symptom yang tepat.
Aku menahan diriku untuk ke dokter sampai minggu yang tepat. Rencana awalnya Minggu ke 8 (Catatan kali ini detail, karena aku sudah menggunakan aplikasi - mantap yah zaman now).
Tapi keinginan untuk tahu begitu besar, akhirnya Minggu ke 7 datang ke dokter.

Minggu 7
Kantong kehamilan GS 17mm, bulat, bagus. Tapi tidak ada yolk sac. Tidak ada Fetal pole.
Saya langsung tanya dokter, apakah ini indikasi BO (Blighted Ovum). Jawaban dokter, Iya ada ke arah sana, tapi harus menunggu lagi karena GS nya ini masih 17mm setidaknya 2 minggu.

Pulang ke rumah, rasanya sedih. Apakah kehamilan yang ditunggu sekian lama, akan lagi berakhir dengan BO. Sederet rencana ke depan pun semua on hold.

Di saat ini, aku bersyukur aku punya teman berdoa, mereka yang mengetahui keadaanku juga turut didalam penantian bersamaku.

Selama masa ini, aku, papa dan Josh keep on praying, selain menjaga kesehatan diriku juga.

Aku rencanakan Check up berikutnya tanggal 31 Mei (Minggu 9 +), agar beberapa hal yang harus kukerjakan sudah selesai. At Least tanggal 1 Juni libur, jadi antara bahagia atau bisa nangis dengan sepuasnya hehehe

31 Mei
Siang hari sesudah bermain dengan Josh, ada flek pink. Bingung apa artinya ini. Tapi aku putuskan tetap masuk dalam kelas hari itu, namun minimalisasi gerakan, karena belum ada konfirmasi apapun.
Jam 7 malam masih duduk di kelas bersama orang tua anak lainnya. Praktek dokter selesai dalam waktu setengah jam lagi. Dan benar, malam itu saya tidak bisa periksa ke dokter.
Dalam perjalanan pulang, Josh bilang "Ma, aku jadi ada kesempatan lagi berdoa untuk dede."
Iya yah, menunggu dengan berdoa. Malam itu Josh berdoa, supaya dia bisa jadi koko yang baik.

Sebenarnya dari begitu banyak artikel dan sharing yang kubaca hampir kebanyakan GS 17mm yang kosong akan berakhir dengan BO. Tapi ada juga sharing yang berbeda, dan aku berharap bisa masuk dalam yang mendapatkan keajaiban.
Namun aku sadar, ketika bukan sekarangpun, artinya Tuhan tahu yang terbaik untukku.

Minggu 10 kurang 1 hari
Pagi-pagi kami sudah bersiap ke Dokter. Menunggu 30menit di ruang tunggu membuatku mual, seperti orang yang akan naik panggung saja.
Masuk dalam ruangan, dokter katakan, harusnya sudah bisa lihat dengan jelas, dan mulai bertanya sudah test darah, apakah vitamin masih ada, sementara saya bersiap di periksa. Dalam hati, dokter lebih percaya diri daripada aku hehehe.

Pas USG transvaginal, erhmmm kantong itu kosong. GS 29mm. Aku tahu apa maksudnya.
Dokter memeriksa berulang, kiri kanan, dan sebagainya, namun memang kosong.
Josh pun berjalan melihat ke layar dan dia melihat kantong yang kosong. Langsung dia minta dipangku papa. "Pa itu tidak ada dede yah." Iya kata Papa. Dan dia langsung sedih.

Tentu dokter mempertanyakan apakah aku akan 2nd opinion, tindakan apa yang dilakukan, pemeriksaan darah untuk tahu level HCG, kemudian soal kuratase.
Aku menjawab, jikalau boleh, aku ingin coba obat terlebih dahulu.
Aku tak ingin lagi di suntik maupun masuk ke meja operasi.

Dalam perjalanan pulang, kami melanjutkan kegiatan kami seperti biasanya, pergi berenang.
Aku butuh waktu untuk menyalurkan emosiku dan biasanya berenang adalah hal yang paling kusuka.
Saat berenang itu, aku bertanya pada diriku. Bagaimana perasaanku?
Tentu aku sedih, tetapi kejadian BO dalam kehamilan pertama 9 tahun yang lalu, ditambah sudah ada kehadiran Josh dalam keluarga kami, membuat aku rasanya bisa lebih tenang menerima keadaan ini.
Aku sedih ketika mendengar Papa bercerita tentang Josh. Itulah iman anak, dia berdoa dan berharap sepenuhnya didalam ketidakpastian, ketika akhirnya ada jawabanpun, dia tahu, dia sedih dan dia menerimanya.
Aku bertanya, bagaimana yah dengan diriku. Aku percaya ada miracle, aku juga berharap. Tapi didalam pengharapanku, aku menggunakan logika ku dimana dari tulisan tulisan kedokteran, aku tahu hitungan besaran harapanku. Aku bertanya-tanya, apakah sebenarnya aku sudah berharap sepenuh hatiku sampai seperti Hana? Tuhan, Engkau tahu imanku lemah, dan aku takut.
Aku melihat lagi dalam hidupku, sesungguhnya Tuhan telah melakukan hal ajaib dalam hidupku. Ketika aku tidak meninggal dalam kecelakaan, ketika rumah terluput dari kebakaran padahal api sudah menjilat dinding belakang, ketika bisa memiliki Josh, bahkan ketika masih bisa menulis saat ini, dan menikmati berelasi dengan keluarga dan teman.
Tadi di kolam, aku mencium Josh, kukatakan pada Papa dan Josh, ada miracle yang Tuhan telah kasih yaitu Josh. Setiap benih kehidupan yang Tuhan berikan adalah Miracle.
Kalaupun saat ini jawaban Tuhan adalah belum, aku akan menerimanya dan berpikir apa yang bisa kulakukan bagi pekerjaan Tuhan sembari menunggu.

Operasi Myoma

Cukup lama mempertimbangkan hal ini hingga akhirnya memutuskan untuk menjalani operasi.

Berawal dari keinginan untuk mempunyai adiknya Josh jika Tuhan ijinkan.
Dalam kenyataannya sesudah hampir 1.5 tahun mencoba, hal yang dirindukan tak kunjung datang.

Awal January, kami datang kepada Dr. D di gading serpong.
Dari pemeriksaan Dr. D, beliau menemukan myoma di posisi yang sulit dan menyarankan untuk diangkat saja.
Wah. Haruskah hanya dengan cara operasi? Apakah tidak ada cara yang lain? Apakah memang saluran sel telur ke rahim susah?. Segudang pertanyaan dikepalaku.

Dr. D pun menyarankan aku untuk Hsg. Jadwal yang kudapat di bulan Maret karena memang ada hari tertentu untuk pemeriksaan ini.

Keluar hasil Hsg, aku lebih ceria, karena ternyata tidak ada sumbatan.
Sebenarnya Dr. D bilang, untuk menstruasiku pun masih terbilang lancar.
Jadi jika ingin menjajal cara yang paling biasa dengan tambahan obat hormonal yang diminum, maka di coba saja dulu.
Dr D. Juga infokan bahwa myoma ini membuat pelekatan di rahim susah.

Yah dimulailah usaha yang pertama.
Ternyata memang tidak mudah, gugur.
Dalam hatiku, aku mulai memikirkan usiaku, dan apakah memang harus dijalan operasi.

Satu malam, aku keingat hasil Hsg, aku bongkar lagi dan aku lihat, mengapa ada 2 bongkahan yang terlihat yah, depan belakang, dengan yang depan lebih besar.

Akhirnya saya dan Calvin berkeputusan untuk cari 2nd opinion, tepatnya dengan Dr yang dulu tanganin operasi endrometrial mama, Dr. S di PIK.
Pulang dari liburan, kami pun bergegas dengan waktu, mengingat Jadwal Josh masuk sekolah.

Hari ini 12 July 2017, masuk ruang operasi jam 2. Pengalaman pertama di ruang operasi yang biasa saya lihat di film film. Yang juga membuat grogi adalah bius spinal, banyak yang mengatakan akan sangat sakit.
Herannya, saya tidak merasakannya. Justru yang paling sakit adalah pas test apakah ada alergi antibiotik di bawah kulit.

Hanya saja memang mual sekali rasanya sesudah operasi selesai.

Hasil dari operasi.
Diangkat 5myoma. 1 yang terbesar 3.9cm. 1 temannya 3cm (ini yg rasanya di belakang, sehingga usg selalu terlihat satu saja), sisa lainnya ukuran 1cm.

Hal lainnya yang harus kusyukuri, hari menstruasi yang harusnya di tanggal operasi malah bisa maju 3 hari, sehingga saat operasi, ketidaknyamanan karena menstruasi terhindari.

Hari ke 2 pasca operasi merupakan hari terberat untukku, selain mual, jahitan mulai sakit, sekaligus juga lambung kembung dan nafas terasa pendek.

Untung hal itu tak berlangsung lama.
Hari ke 3 saya sudah mulai bisa tertawa. Walau tertawa yang artifisial banget karena tidak boleh menggoncangkan bagian perut bawah.
Malam hari dikunjungi oleh adik, ngobrol dengan mama yang menemaniku 2 hari dirumah sakit sepanjang siang. Hmm time may passed, but it will remain in my memory.

Total tinggal di rumah sakit 4hari 3malam. Ini kali ketiga masuk dirumah sakit.
Kali pertama masa kecelakaan dahulu, kali kedua masa melahirkan Josh.
Aku tak pernah suka rumah sakit, tapi aku salut untuk orang-orang yang bekerja didalamnya.

Bersyukur untuk segala moment keadaan yang Tuhan ijinkan ada dalam hidupku.
Semoga membuatku lebih baik didalam hidup yang seharusnya memancarkan kasihNya.

Sekarang masa kesakitan itu sudah lewat. Tinggal komitmen untuk hidup lebih sehat lagi.
Pengaturan waktu tidur menjadi pe er utama yang tak kunjung selesai *blush*.

When things didn't go as you planned - Date vs Fever

Been a long long time, we haven't had a night out date.
We planned for have it once for movie. It's such a perfect time as the movie is one of calvin's fav genre and my mom was willing to take care of josh.

But....
Near the lunch time, Josh told me that he feeling weak. I asked him to change his dress, but he too tired. Just when I help him, I knew he got fever. His body temperature was high.
I wonder why, when i pick him from school, everything ok.
He gladly showed me his trophy, winning the 1st place on computer activity in school.
I checked his tumbler and found out he didn't drink during school time.

Before nap, quickly let him drink a glass of  papaya juice. Then he slept from 12am to 6pm. Wake in the middle, took a drink and lil bit food.

At noon, he has a soup for dinner. Then grandma also give him another glass of juice.

Fever still high. Took paracetamol before sleep.

Wish he could get better.
Our date can wait.

Still asked daddy to play chess

Josh and Varicella / Chicken pox

For the last week of school, Josh stayed at home.

On Thursday, After watch Dino movie, we went home and he quickly fall asleep.
On Friday, I bring him and mom to mall, but during our walk, he look tired all the time. At that moment, I guess he get bored while accompany my mom taking look around.
Back at home, he take a nap.
At night, when I hug him, I saw two red dot on his forehead, I still guess that because mosquito bite him, as he sleep on sofa in the morning.
On Saturday, there some red dot but not much. We still bring him to Piano lesson and also watch concert and he still be able to do it.
We have prepared for Sunday - Josh will get baptized.
But at night, when I check his body, two red dot turn into blister. Can't think any other than virus infection, and positive get a chickenpox - Varicella.

Now, some people will question where he got the virus infection?
For me and Daddy, it's could happen anytime, anywhere.
I forgot the Varicella vaccination, but I heard, it's hard to get in the last one year.

What to do?
During illness, Josh always loss his appetite, and that's really challenging us to keep the nutrition intake.
Eat warm porridge, Drink plenty of water, juice to prevent dehydration.
We have medicine in hand like paracetamol, re-hydration drink (Oralit), antacid (Polysilane), all in case for first aid if happen in middle of night.
Josh throw up, and easily get stomach upset. Need to feed him little bite, and as a support for the first time I gave him multivitamin syrup.
For the skin, we brought calamine lotion to sooth the skin. Then according to pho-pho, shall avoid some food like, shrimp, egg which could cause the itchiness more.

On Tuesday, the red dot stop appears. But his appetite worsen. Josh complain about his stomach, but then He could eat and act normally if I let him play the game. Therefore I still observe what actually happen.
On Wednesday, at night the first time I saw Josh feel very hurt at his stomach area.
On Thursday morning, we went to doctor and took a blood test.
His braveness proven, he's not crying at all, when nurse stick the needle into his arm, not only one but twice cause we need more blood.
Result he also got infection, no wonder his stomach get hurt.
Doctor gave recipe of antibiotic and medicine to help control the gas.

On Friday, everything back to normal, he could eat well, run, dancing, teasing us, talk a lot, laugh,
Our Josh is back.
We felt glad and relieve.

After all, his never stop talking as he have fasting for too long.

Thanks God for Josh.

Tambal Gigi Geraham Anak 5 Tahun

Yah, gigi Geraham Josh karies, bolong!. Padahal selama ini, bisa dibilang Josh dibatasi untuk makan permen maupun coklat. Selain itu kami selalu membersihkan giginya Josh minimal 2kali sehari.

Sayangnya makanan sisa disela gigi yang tidak terbersihkan membuat kuman kuman merajarela dalam gigi geraham Josh.

Alhasil Mama pun mempunya PR baru, membawa Josh ke Dokter Gigi.

Hal pertama yang mama pertimbangkan adalah, Dokter gigi yang ramah dan mengerti dunia anak.

Kami beruntung boleh mengenal Dr Gigi Yeanne Rosseno.

Awalanya Mama hanya tahu beliau adalah guru sekolah minggu Josh. Sesudah beberapa lama mengenal barulah mengetahui bahwa beliau juga dokter gigi.

Karena Jarak serpong ke tanjung duren lumayan banget, mama sempat berpikir untuk mencari daerah sekitar rumah. Namun kembali lagi, Mama ingin pengalaman pertama Josh menerima tindakan dari drg menjadi pengalaman yang berkesan baik, sehingga faktor drg yang ramah dan mengerti dunia anak menjadi prioritas mama.

So, berangkatlah Mama dan Josh hari ini ke tempat praktek dokter.

Ruangan yang bersih dan nyaman, serta keramahan dokter membuat Josh cepat nyaman.

Setiap akan melakukan tindakan, drg selalu menjelaskan alat yang dipakai sesuai dengan bahasa anak, dan membuat anak tidak takut. Mulai dari Kaca, alat Pembersih, Alat untuk menggosok, alat menyemprot air dan penyedot air, hingga alat memoles gigi.

Herannya, Josh dengan suka rela membuka mulutnya tiap kali ada tindakan. 

2 gigi Geraham pun selesai ditambal. (karena sisa makanan masuk disela, hingga karies pun mengena ke dua gigi)

Lega dan senangnya hati mama.

Terus terang, mama tidak sangka bahwa kunjungan untuk tindakan pertama kali ke dokter gigi akan berjalan selancar ini. 

Josh, engkau sudah belajar menjadi anak pemberani. Good Job Josh.

Next masih ada 2 gigi Geraham lagi.

P.S. Mama juga banyak pr untuk gigi mama juga hehehe.

Praktek drg Yeanne Rosseno - Golden Dental Clinic - Tanjung Duren.

Josh dalam tindakan, Good Job my son!

Gigi geraham yang masih akan dibersihkan. Lumayan yah bolongnya. hiks.

Test Mata Anak - 2nd Eye Screening - 5 Year Old Josh

Sesudah pemeriksaan mata Josh yang dilakukan pertama kalinya usia 3thn, klik disini, maka menjelang Josh 5thn tanggal 6 Mei lalu, mama kembali menjadwalkan untuk test mata kembali.

Tahapan yang dilewati Josh:
Pemeriksaan Awal: Mesin dan Eye Chart.
Pemeriksaan Dokter: Memeriksa Fisik Mata, Memeriksa Fungsi penglihatan dengan Eye Chart dan juga Reaksi Mata.

Dari hasil pemeriksaan Awal Mesin dan Eye Chart, mata kiri Josh ada minus 0.5. (mata Kanan yang di test dahulu baru mata kiri)
Namun dari hasil pemeriksaan Dokter, malah mata kanan Josh yang ada minus 0.5. (mata Kiri yang ditest dahulu baru mata kanan)
Tetapi rasanya dokter tahu bahwa anak kecil seperti Josh suka bosan dan kadang saat saat terakhir suka malas, maka dokter berkali kali menanyakan sebelum menambahkan minus. itupun sesudah menambahkan, Josh masih malas menjawab, sampai dibujuk baru menjawab dan langsung benar.
Dari sana dokter simpulkan belum memerlukan kacamata, tetapi harus dijaga gaya hidupnya.
Biarkan bermain diluar. Tv sehari 1jam, Ipad seminggu 1kali 30menit saja.
Menurut Dokter, karena minus saya adalah 3 dan papa dibawah 1, maka biasanya ini jarang diturunkan secara genetik. Biasanya minus yang diturunkan apabila lebih dari 4. Hanya menulis sesuai dengan yang diucapkan oleh dokter, belum sempat juga mencari tahu jurnal ilmiah penelitian dibalik angka angka tersebut hehehe. Dokter menyemangati untuk terus menjaga mata Josh agar tidak perlu memakai kacamata.

Kemudian Dokter juga menginfomasikan bahwa dari hasil pemeriksaan fisik mata Josh, karena memang struktur muka, mengakibatkan bulu mata Josh menggesek mata Josh.
Hal ini tidak dapat dihindari, hanya dilihat apakah nantinya akan ada perubahaan pada struktur muka dan jikalau tidak, mungkin diperlukan tindakan operasi kecil supaya bulu matanya tidak menggesek.

Kali ini ada hal baru yang harus menjadi perhatian kami mengenai bulu mata yang menggesek bola mata. Tentunya juga tetap menjada mata Josh. Tetap semangat sampai tahun berikutnya eye screening.

Reaksi Josh yang lucu saat dilakukan Test Eye Chart

Test Mata Anak - Eye screening - 3 Years old Josh

Pernah terpikir untuk melakukan general eye screening untuk anak usia 3 tahun walaupun tidak ada keluhan apapun?
Yup, Setelah Josh melewati ultah ke 3 nya, saya bersiap dengan jadwal test mata.
Reason? Hanya ingin tahu bagaimana penglihatan Josh.

Mempertimbangkan waktu dan jarak, saya memilih rumah sakit yang terdekat untuk general eye screening.
Hasilnya? Josh harus memakai kaca mata! WHAT? Kaget dan panik dan merasa bersalah pastinya.

Namun saya tak lantas serta merta menerima hasil tersebut. Kenapa?

Beginilah Cerita dibalik pemeriksaan mata Josh:
Awalnya Josh diperiksa oleh Mesin dan dilanjutkan Eye Chart. Saat menggunkan Eye Chart, Dokter langsung menambahkan lensa minus yang berat (tidak secara progresif) saat Josh sulit menjawab.

Kemudian Dokter mengambil kesimpulan bahwa "Josh harus memakai kacamata dengan Minus sesuai dengan yang dibaca oleh Mesin kacamata. Dan Dokter menekankan hal itu berkali kali karena jika tidak maka nanti akan ada lazy eyes."

Hello, sebagai orang awam yang bertahun tahun memakai kacamata, aku rasanya cukup tahu bahwa terkadang mesin membaca terlalu precise, sedangkan kadang kita tidak perlu yang sedemikian precise untuk penglihatan sehari hari.

Aku masih ragu didalam hati perlukah Josh kacamata, ditengah shock yang ada, Papa melanjutkan pemeriksaan.

Giliran Papa yang diperiksa dengan Mesin dan juga Eye Chart.
Dokter langsung menaruh lensa sesuai dengan ukuran mesin saat test Eye Chart.
Saat Papa merasa dan mengeluh pusing, Dokter serta merta menyesuaikan lensa dengan menurunkan minus dan juga silindernya.
Kata Dokter "Memakai kacamata itu yang penting nyamannya walaupun berbeda dengan angka yang dikeluarkan Mesin"

Tersadarlah aku, bahwa Jawaban Dokter terhadap pemeriksaan mata Josh dan Papa tidak konsisten, membuat saya mantap untuk mencari jawaban lain pada Dr Mata Spesialis Mata Anak.

Saya Ragu Josh harus pakai kacamata karena:
1. Cara pemeriksaannya sendiri tidak sesuai dengan kondisi anak.
2. Josh diperiksa saat dia pas sudah lelah, dan pas memeriksa mata kirinya, Josh goyang sana sini dan lama sekali.
3. Saat membaca Eye Chart, Josh menyebutkan sampai yg sekecil2nya, tapi karena anak cepat bosan, jadinya dia ogah2an saat giliran mata yang lain.
4. Jawaban dokter yang tidak konsisten.

Semenjak pulang dari eye screening yg pertama, saya test josh sendiri, dan dia bisa menjawab dengan baik dengan masing-masing mata.

Sambil mencari waktu yang tepat untuk mencari 2nd opinion, yang kulakukan adalah:
1. Memberitahu Josh tentang guna mata dan kondisi mata dia, sehingga mama papa mesti membatasi tontonan dan games.
2. Membatasi interaksi Josh dengan TV, Ipad, ataupun mobile phone. Max 30menit dalam sehari dan kalau bisa puasa.
Alhasil, Josh lebih sering bersamaku di dapur, mainan berserakan, buku dimana mana. :p.
Tapi bukankah itu hidup dengan anak kecil, membuat hidup lebih ramai.


2nd Eye Screening
3 Bulan sesudahnya, pas Josh libur tengah semester PG bulan Oktober 2013, saya merencanakan pemeriksaan ulang terhadap mata Josh.
Kali ini saya ke Jakarta Eye Center, buat janji dengan dokter spesialis mata anak.
(Kebetulan dulu Josh waktu matanya bengkak, kita sudah pernah ke JEC).

Sebelumnya saya sudah googling juga nama sang dokter, dan dari bacaan yang ada membuat saya yakin, ini dokter yg sekiranya tepat bisa tanganin anak anak :)

Sampai di ruang tunggu lt 4 JEC, owww banyak sekali mainan anak-anaknya. Josh pasti tidak akan bosan menunggu.

Pemeriksaan Awal JEC
Kami pun dipanggil untuk pemeriksaan mata Josh dengan Mesin dan juga Eye Chart.
Cara penangannnya sangat beda, seakan mengajak anak bermain selama pemeriksaan. Dan yang pasti alatnya pun lebih komplit.
Waktu diminta menyebut gambar, sang operator dengan cepat mengubah gambar yang besar ke yang kecil, sehingga Josh tidak keburu bosan.
Dari sana, saya infokan bahwa Josh didiagnosa ada minus dan silinder, dan diperiksa lanjut dengan satu alat pengukur. Disimpulkan memang ada mata kiri tapi sangat sedikit sekali, nanti komunikasikan dan diperiksa kembali oleh dokter.
Antrian masih 3orang lagi, tapi kembali lagi, Josh senang bermain di ruang tunggunya.

Di Ruang Dokter JEC:
Sampai pada giliran kami, dokter memeriksa mata Josh dengan gambar di di bolpen dan juga memutar gambar2 di papan. (Hmm agak susah menggambarkan cara pemeriksaan dokter dalam bahasa awam :p).
Sesudah itu, dokter menjelaskan bahwa per saat ini, "Josh tidak memerlukan kacamata sama sekali". Penglihatan mata Josh 100persen baik.
Saya katakan bahwa dulu didiagnosa ada minus dan silinder.
Dokter berkata: " peraturan international, silinder dibawah 0.5 dan minus dibawah 1, belum memerlukan  kacamata" (ok, belum sempat menggoogling peraturan ini).
Diperiksa juga tidak ada lazy eyes.
Dokter menyarankan untuk pemeriksaan 6bln - 1thn sekali. Menjalankan gaya hidup yang baik, artinya lebih banyak activity, jangan hanya tv or games karena bisa saja sekarang matanya baik, tapi beberapa saat kedepan rusak.
Selain itu aku bertanya apakah Josh ada juling (strabismus) matanya karena terkadang lihat ada terkadang tidak?
Penjelasan Dokter: Josh itu tulang hidungnya tidak mancung (alias pesek :p), jadilah terkadang terlihat juling.

Semua penjelasan Dokter membuatku lega, membuatku bertekad untuk menjaga mata Josh lebih baik lagi. Makan banyak buah dan sayur, batasin waktu nonton dan main di ipad or mobile phone, mengajak untuk aktif bermain diluar.

Kapan anak saya harus diperiksa matanya pertama kali?
source: Leaflet JEC - Children Eye Care.
* Mata anak anda harus diperiksa pada tahun pertama kehidupan jika anda atau dokter anak anda mencurigai adanya gangguan mata pada anak atau adanya riwayat gangguan mata dalam keluarga.
* Semua anak-anak harus mendapat pemeriksaan mata lengkap sebelum usia 4 tahun jika tidak dicurigai adanya gangguan penglihatan atau riwayat keluarga, dan di cek kembali tiap 1-2tahun.
*Anak dengan kondisi medis tertentu, seperti diabetes, kelainan darah, gangguan metabolisme, dan kelainan genetik perlu diperiksa secara regular.
*Perkembangan mata pada anak-anak berlangsung sampai usia sekitar 10tahun sehingga pemeriksaan dan penanganan dini gangguan mata anak sangat penting untuk menghasilkan penglihatan yang lebih baik.

Yakinkah mata anak anda baik baik saja? Perbaharuilah gaya hidup dan Lakukan Eye Screening.

Balada Campak Jerman - Rubella

Tanggal 9 November, sesudah sekolah minggu, Josh terasa hangat badannya yang menurut papa nya itu karena kurang minum.
Nah benar saja feeling mama, malam hari muncul rash di muka Josh.
Ok, hangat ajah, enggak demam, rash di muka menjalar ke bagian atas badan, tidak ada sariawan dimanapun.
Josh masih heboh lari sana sini, makan minum tidur semua oke.
Hmmm rasa-rasanya koq campak yah.

Kyaaa, ketular dari mana?
Mama, yang namanya virus mah dari mana saja, dan pas kebetulan akhir minggu itu Josh mainnya heboh dan tidak tidur siang.

Sambil pantau, sambil gunain sypmtom checker, sangat positive ini mengarah ke campak jerman, aka rubella.
Tetap per 3 jam pantau suhu.
Tetap lihat kondisi aktivitas nya, kalo mulai rewel berarti mulai red sign ke dokter.

What to do next?
Makan, minum, istirahat yang cukup.
Booast imune dengan makan banyak buah -buahan.
Minum lemon+madu as usual.
Karantina di rumah, alias tidak sekolah selama 6hari sejak rash pertama muncul, karena proses nular antar anak kecil lebih mudah, misal bersin or batuk tidak tutup mulut, alpa cuci tangan. (Walaupun sebenarnya rash belum muncul juga virus itu sudah nemplok di badan dan bisa meninvensi kepada yang lain, tp biasanya siapa yang tahu, kalo badan tidak fit barulah timbul tanda-tandanya).

Sesudah 4 hari rash nya pulang hilang dari satu badan.
Tampaknya tidak ada yang berbeda dari hari biasanya Josh kecuali badan nya memerah saja.

Tanggal 28 November, jumat siang merasa kenapa ini badan pegal sekali, perkiraan pertama, karena hari kamis heboh berenangnya. Mumpung tidak ada Josh yang ikut, plus dapat kacamata renang baru dari papa yang kalo lihat air kolam masih jernih, jadilah brenang tanpa stop mengikuti si papa.
Jumat malam pas bangun, looo muka nya koq memerah, apakah demam? Pas tanya Josh, apakah ada merah-merah di badan mama. Kata Josh, Iya, mama kena virus strawberry kayak Josh.

Kyaaaaa, koq bisa, padahal dirumah Josh sudah sembuh 2mingguan lalu.
Dan menurut cerita pho-pho Josh, semua soal campak dan cacar air sudah pernah kena pas kecil, alias seharusnya sudah ada kekebalan. Tapi mengapa masih? Tanyakan pada mama yang tak pernah jalanin vaksinasi dewasa. *sigh*

Yang kubaca kalo terkena ke anak anak maka gejala yang dialami akan ringan sekali, tapi kalo ke orang dewasa, banyak keluhannya, dan tidak perlu diungkapkan juga betapa bahaya buat ibu hamil trisemester pertama.

Dan yupssss... 2 hari tergeletak di ruang tidur, semua tulang persendian sakit, kepala nyut-nyut, hanya paracetamol menjadi teman pengurang rasa sakit. Dan sesudah itu berlalu, itchy di bagian yang masih memerah.
Koq beda banget yah sama Josh, huaaaa.....
Alhasil habis ini aku ingetin si dede, kamu, go vaksin MMR.

Something to learn,
Kalo sudah lagi berhamburan penyakit di sekitar, immune tubuh adalah yang paling utama. Makan, minum, tidur, gaya hidup, dijaga dengan baik, tentulah tidak mudah goyah diserang oleh virus-virus.
Vaksinasi bukan hanya saat anak-anak, ada untuk dewasa, ditilik sesuai dengan apa yang diperlukan dan ambillah.

Medical Check Up - USG Mamae

Koq tiba tiba kepikir USG?

Sebenarnya sudah sejak tahun lalu (2013) ingin screening kesehatan secara menyeluruh. Terutama saat mama sudah selesai semua proses pengobatan medis nya (kemoterapi dan radiasi).

Kepikirannya adalah ambil paket medical check up dari rumah sakit, karena pasti harga nya jauh lebih bersahabat ketimbang lepas satu per satu. (Tentu sesuai dengan kebutuhan).

Tetapi karena saat William sakit, aku mulai melalukan cek detail fungsi hati dan juga USG abdomen, kemudian pengulangan pap smear, test darah, alhasil, ditahun ini aku tidak mengambil paket.

Namun ada yang dari dulu saya ingin lakukan yakni USG Mammae (Payudara).
Kenapa bukan Mammography? Erhmmm, lupa baca dimana, tapi untuk usia dibawah 35thn, USG cukup.

Jadi saat Josh diliburkan sekolah senin, langsung telepon rumah sakit, tanya dokter radiologi yang available, dan yah, tidak dengan tunggu antri lama sesuai jam janji yang diberikan, langsung dimulai proses pemeriksaan.

Hasil USG: BI-RADS 2.
Cyst on the right Breast (Ukurannya mendekati 1cm dan 0.3cm)

I'm not surprise actually.
Somehow aku memang ada berasa sedikit aneh, tetapi semua penampakan normal.
Waktu dulu menyusui Josh, memang right breast ada yang menyumbat, dan Dsa yang baik itu tetap menyarankan dan mensupport untuk menyusui langsung, dan benar suatu hari, my right breast langsung plong.
Kebayang kalo tidak semangat menyusui langsung...

Cyst sendiri bisa timbul atau hilang karena ada nya pengaruh hormonal dalam tubuh kita, yah bisa dibilang bagaimanapun keadaan yang keluarga kami hadapin sedikit jauh berpengaruh pada kesehatan.

Tidak dipungkiri, sampai saat inipun banyak hari dimana sulit untuk memejamkan mata.

Nah sekarang hubungan dengan tiba tiba konsumsi daun pepaya, ada zat didalam tulang daun pepaya yang bagus untuk melancarkan sumbatan dalam payudara.
Ok soal ini, link yang didapat mungkin ketika mencari banyak yang berasal dari publish pribadi. Tetapi dari membaca baca yang ada, enggak ada salahnya mengkonsumsi daun pepaya seminggu sekali ;) dalam kadar yang cukup.

Manfaat pepaya menurut deptan - http://epetani.deptan.go.id/budidaya/khasiat-buah-pepaya-7894
Tulisan Penelitian daun pepaya kaitan yang masih perlu diteliti lebih lanjut untuk pengobatan kanker - http://www.ncbi.nlm.nih.gov/pubmed/19961915

Saran buat teman-teman wanita yang membaca blog ini, lakukanlah screening kesehatan secara berkala.
Cari tahu informasi, terkadang ada yang promo paket medical check up, manfaatkanlah itu.

What inside Medical Box

Last Monday, Josh having a school holiday, 

but instead of having fun outside, we need to stay at home.

Why?

Diarrhea!

As Mommy, regarding to Josh illness, I barely guess wrong. 

You just got the instinct when your child didn't feeling well.

At the morning, saw his feces, even just once, I just felt that this will turn to diarrhea.

What to do?

Prevent dehydration was my first plan.

Search for Oralit (contain salt and electrolyte needed)

I always put oralit in my medical box and I also put some in my mom house.

For the 2nd toilet time, I'm sure this gonna be a long day.

Good thing, Josh could cooperate with me, drink one glass of Oralit after I cleaned his bowel.

He still active (a critical proof that he still oke), can eat little by little.

After 6 times went back forward to the toilet in a day, it's all stop.

I explained to him, next time always wash his hand, never put his hand into mouth, mama couldn't watch over and remind him all the time.

A good lesson, and now he seem to pretty aware of not putting his hand into mouth without washing it first.

Jatuh dan Robek di Dagu Anak 4tahun

Hari selasa lalu, mama memutuskan untuk berkunjung ke rumah pho-pho dikarenakan jadwal sekolah Josh yang lebih santai.

Menjelang waktu siang, mama dan Josh sudah siap tidur, tiba tiba Josh ber- ide untuk membawa bola2nya ke atas. Dan karena Josh sudah sering melakukannya sendiri, maka mama membiarkannya.
Tak brapa lama, suara jatuh dantangisan josh terdengar, mama tersontak kaget langsung keluar.

Josh jatuh di tangga dan berdarah.

Pikiran pertama luka didalam mulut, tapi semua baik saja.
Ternyata luka menganga di dagu hampir sekitar 2cm dengan lebar 0.5cm. Luka besar yg pertama mama lihat di Josh. Mama pun jadi cukup histeris dan untungnya ada auntie yg bantu lakukan instruksi mama.
Diambilkan es untuk menghentikan pendarahan dan Info papa untuk menuju ugd rumah sakit dan siap2 menunggu taxi menjemput.

Josh tetap nangis, dia kaget, dan dia minta untuk tidur dikamar atas. Akupun membawa dia kembali ke kamar atas, meniduri nya dengan bersender pada bantal 3 lapis, agar dagu nya menekuk dan lukanya tidak menganga, Josh pun tenang dan hampir tidur.

Sepanjang jalan menuju rumah sakit, Josh tidur. Dalam hati cuma berharap ini tidak perlu sampai harus jahit. Ada penyesalan kenapa ijinkan Josh ambil bola lagi, padahal sudah berbaring siap tidur. Tapi sudahlah, bersyukur bahwa hanya luka di dagu, tidak sampai kebentur kepala belakang, dsb.

Sampai di ugd, papa sudah disana dan oleh dokter diperiksa, dan untunglah memang saran dokter karena luka tidak dalam, dan guna meminimalisasi trauma pada anak, maka digunakanlah produk dermabond, alias lem untuk jaringan luar.

Untuk menaruh lem ini saja, sulit. Tidak terbayang jika harus dijahit. Sigh.

Sesudah semua selesai dan tiba dirumah, Josh sudah kembali ceria. Josh juga berani naik tangga (awalnya mama duga dia akan takut), dan juga lahap dalam makan.

Mama dibekali obat antibiotik, sebelum memutuskan untuk meminumkannya mama tanya ke Josh apakah sakit? Nyut2 di luka?
Josh jawab tidak. Dan juga tidak ada pendarahan.

Gaya Josh juga kembali biasa, hanya dengan dagu berperban.
Sore harinya Josh kita tanya bagaimana jatuhnya, dan dia cerita sambail nunjuk di tangga, dia bilang hanya dagu saja yg kena, semua yg lain tidak.

Hari jumat kemarin, kita ganti perbannya (disarankan untuk diganti oleh dokter),dan terlihat luka nya sudah mengering. Hope next week sudah bisa dilepas perbannya. We love you Josh.

P.S. untuk bahan bacaan:
http://www.mayoclinic.org/first-aid/first-aid-cuts/basics/art-20056711

http://www.m.webmd.com/a-to-z-guides/ss/slideshow-caring-for-wounds

http://www.aafp.org/afp/2000/0301/p1383.html

After Chemotherapy - What Next?

We might questioning what will be the next step when we have done Chemotherapy.
How do we know whether the Chemotherapy react positively or stuck.

Therefore we asked our doctor and he said that we can do the scan.
CT - Scan or PET CT Scan?
Which one shall be our choice?

After hearing doctor explanation, reading some from internet, considering the expense, we decided to go with PET CT Scan.

Now, the result of PET CT Scan:
There no abnormal tracer accumulation seen in the mediastinum, lung and abdomen.
No evidence of FDG avid lesion seen in the liver, adrenals and no osseous lesions noted.

But there was a solitary focus intense FDG tracer accumulation is seen in the left lower pelvis - active solitary metastatic lymph node in the left internal iliac group. Measure: 9mm*1.5cm with SUV 9.5.

What to do next after Scan?
We consult with doctor (1st), and he recommend us to have Radiotherapy as soon as possible 25 external and 2 internal. The reason, Radiotherapy was used to control the cancer cell.
With 2nd doctor on the seminar, he also suggest us to have Radiotherapy and consult with Radiotherapist.
Then we also consult with our Chemotherapy doctor. He gave us three choices:
a. Go with Radiotherapy
b. Do the Surgery, remove that part of lymph node, do the biopsy
If the biopsy prove that cancerous cell, then do the Radiotherapy. If not, then we don't need to do anything.
c. Wait for 3 to 6 months and do scanning.
If later on the measurement became bigger, then we shall do the Radiotherapy.

Why the doctor gave us choice?
Cause according to him it's just one in the left iliac, it's might be Inflamation, but it's might be cancerous cell. We could not get conclusion that the cancerous cell cause it's not proven yet, therefore he gave us a choice.
He explain to us the process of PET CT Scan, using FDG, and all.

We did search a journal in Internet about PET Scan interpretation.

We then consult with Radiotherapist (recommended by the doctor).
Before we met the Radiotherapist, I met the young assistant doctor. While discussing with him, he told one thing that seem reasonable for me.
It's near to the origin where the cancer cell start, the suv is bright, it's increase the possibility that was cancerous cell.

Then when we meet the Radiotherapist doctor, hmmmm he seem quiet for a while and then he asked me why we didn't do any radiotherapy before.
I told him that I have consult with doctor. I ever asked whether we need radiotherapy or not. The doctor gave me an answer, "If we want to we can take it, but my mom cancer was not localized anymore, it's was a systemic cancer." We think of the doctor explanation, then our choice was chemotherapy.
Then the doctor continue that we could have a choice to wait for few months also.
If we want to do the radiotherapy, need 25 times external only.

After a long discussion we came up with conclusion that we will do the radiotherapy.
We try our best to fight with this disease. Not only though medical treatment, but changing our living style, eating and thinking.
But the most importantly is not how long will you live, but how you used your life. So within this time, hope we could used the time wisely.

Next week my mother will start her first radiotherapy.

HFMD

HFMD - Hand Foot Mouth Disease

I have read about this before and hoping that my son never got this kind of virus infection.
But,.....
He Got it! Argggg.....
Thanks God it's on a week before Chinese New Year and he got it after my mom felt better from her chemo side effect.

Mayoclinic:
Hand-foot-and-mouth disease — a mild, contagious viral infection common in young children — is characterized by sores in the mouth and a rash on the hands and feet.
There's no specific treatment for hand-foot-and-mouth disease. Signs and symptoms of hand-foot-and-mouth disease usually clear up in seven to 10 days.

Check out from the Baby Center site also.

Symptom:
On Thursday night, Josh didn't finished his food, but we think that because he has one ulcer, and also he ate one bread on his Thursday noon school.
Before sleep, his Daddy check his mouth, and found more than one ulcer. Eehh, I have a feeling that this wasn't an usual ulcer in the mouth.
During the night, Josh crying when he awake, and I'm 100% sure that this was early HFMD.

Friday, His mouth start to full with ulcer.
I check his hand and foot, found a red dot, but not much.
The symptom keep continuing that way till Sunday. That's why, Josh couldn't attend his Sunday School and Mozart class *sigh* (he has been waiting to attend the class, asked me to sing the song everyday).

What Josh eat during this time:
From Friday to Sunday, Josh's daily meal as below:
1 can of Refrigerated milk in the morning.
2 small bowl of porridge during the lunch.
2 small bowl of porridge for the dinner.
1 to 2 cup of Ice cream (as yogurt might to sour).
Drink plenty of cold water.
Losing his weight. And what make me stress out, he refuse to drink a cold milk and Ice cream at first. Till I beg him to try several time and he finally knew that cold drink sooth his mouth.

Medicine:
There were no medicine to cure it, only to make it comfortable.
We usually used the Watermelon Frost. During the HFMD time, Josh addicted to it.
So when he want to eat something, he beg me, jump over me, cry out, for make me gave him that medicine.
The most spell out word during his illness only "Obat - drug" - he like saying - give me a drug!
Josh thought that he could ate if only I gave him the frost.
Anyway, I did give him little by little. Of course, otherwise he refuse to ate anything.

Funny one, he saw a crackers (krupuk), then he beg us to gave him a bit.
Then, yeah, he cried when chew it!, I asked him to spill out, but he keep going to eat it again as he like it very much. Haiz.

Where he Got it? and what shall we do?:
Don't know. I suspect that Josh sometime put his dirty hand on mouth. As a boy, he always play everywhere.
As that was virus, time will heal. Just ensure the fluid intake, rest a lot. Watch out for complication symptom and know when to visit doctor.

For us parent, Wash our hand regularly, don't eat the left food, keep our body fit.

Why we shouldn't be near to other kids, cause kids usually put thing into their mouth, so the virus easily spread.
I have heard many stories before that kids got HFMD from school.

Thanks God, it's over now.
On Monday, he ate rice already, even there ulcer left on his tongue (he hate porridge :p).
On Tuesday, he ate spicy beef rendang with hot rice :p.

My mom 3rd Chemotherapy - suspense week

Here the story

as usual, the 3rd day, my mom told us that all her muscle in pain.
Till the 6th day, my mom still survive at home without any side effect than the body feels tired, muscle pain. Yeay, that's a good news.

Then....... something happen on the night 10pm.

My mom felt nausea. Then she throw out all the food.
She got panic, and what worried us happen, stomach pain, increase flatulence (gas), and every organ in stomach related, hurt.

First we gave her, Domperindone 10mg to prevent her from vomit again. But seem need time to work.
Then I remember, once doctor said, to work with Inpepsa, I need pantozol (pantoprazole) to treat high level of acid in the stomach. Then we gave Pantozol 20mg.
My mom went to sleep at 1am after drink her sleeping pills.

Till 3am in the morning, she still felt hurt, a heartburn or hurt in the esophagus area.
Even I said to her that in the morning if she can't hold it anymore we can directly go to hospital, but seeing her in pain, urrgggg.....
Then I remember, I have a copy of drug given during my mom in hospital, searched it, and found Rantin - and browse to make sure that the correct medicine. Ask my sista to buy it. Thanks God, we could found it.
Rantin 150mg - relieve all the pain. Mom back to sleep till 6am.

7th Day, Morning,
Now as she felt no heartburn anymore, she kept complain that she felt hurt on the stomach and went to toilet for pooping everytime she felt hurt.

Now, it was come to psychology thing. My mom mind keep panic and she can't control it.
This the time to decide whether she want to be hospitalized or not. But she couldn't gave us a decision too. Yes, hospitalization fee is expensive, therefore she want to hold it as long as she can, but she also kept complain of the pain. Before she always think that why other people who she know also on the cancer treatment didn't feel any pain like her. That's worsen my mom condition when she couldn't accept the side effect and kept compare her self to other.

As I remember, doctor has prescribe Ativan for my mom. But couldn't find it in a lot of medicine store -out of stock, including in 3 hospital near our area.
Till 2pm, she kept complain why the pain didn't go away. While according to my eyes, I felt that the condition getting better, just need time. Again I took another leap, switch the drug from Ativan into Xanax. They were same family, work differently, but both to treat anxiety related disorder.
At 3pm, We gave one 1mg of Xanax. Everytime the pain goes away, my mom could sleep and rest.

On the night, she said the pain still there but it was not similar to the first chemo side effect.
Then I consult doctor for letting my mom have pain killer drug - Kaltrofen at 10pm. and also Imodium to control the diarrhea.
She could sleep for 6hours - that's make her much much better. Wake around 4am to took a food and sleep again till morning.

Friday - 8th day,
Wake up with better condition even the intestine work so fast, so we took Imodium again.
And yes, everything in control.
Enough sleep will help you to think better.

But, now it was my turn to took care of my lil Josh.
He got HFMD, argggg....
Honestly, I have no idea where he got this.
His mouth full of ulcers, he cry everytime he ate something. Will tell in other post later on.

What I realized, even we keep busy with the illness stuff,
but there nothing to arduous when we walk with God.

Me especially felt that God has been so nice to me, only gave me one illness person at a time.
For people who know me, I easily got stress on a high tension day.
Ok, time to recharge my energy for taking care of Josh.

My Mom 3rd Chemotherapy

Heeeee, already on the middle of Chemo Cycle.
Honestly, my mom seriously want to drop the chemo treatment.

I haven't share on this blog. During the 2nd Chemo treatment, my mom got hospitalized again! in Pantai Indah Kapuk Hospital.
The problem was my mom get nausea all the time even though she consume anti nausea medicine.
She hard to eat which impact on stomachache.
She began to felt anxious and it's worsen her stomach condition.
The only way out was to bring her to hospital.
On the hospital, my mom got a medicine to cure her anxious and her stomach.

Here I share a lil bit of what I learn about "knowing your medicine" during my mom hospitalization time.
Ativan drug given to my mom on the first day. On the 2nd day, I'm asking my mom what she felt. She told me that she felt no energy but her stomachache reduce significantly. So I told my sista to stop the Ativan drug.
I knew I'm not doctor, but I have my reason. Ativan is like anti depressant drug but the side effect was you felt no energy somehow, and felt sleepy all the time.
When my mom could control her self, I think it's better to stop that drug. When the drug is stopped, my mom felt better - more energy - not feeling sleepy all the time.
Somehow I learn, medicine was to be used only when needed. If you feel better already, you can always request to the nurse what medicine to be discontinue. Therefore it's really important to know what medicine was given during your stayed in hospital. There a lot of patient to be controlled each day by the nurse, they need to called to the doctor also. It's might be good if we could actively participate on the treatment of our illness - by asking the diagnose, the medicine name, then searching the usage, side effect, etc. Cause the side effect differs from one to other person, and somehow impossible when doctor and nurse explain all to you.

During that days, my mom told several time that she want to stop her chemo treatment.
Yes, we were ready whatever her decision.

It's wasn't easy to have those treatment.
You can say you put a toxin into your body. It's kill everything and it's hurt!
While it's really cost you a lot.
Something in the world where you pay it and wish to cure you but you get pain from it -> Chemo!
But again, my mom changed her mind after she could took time to think it over.

The 3rd Chemotherapy was yesterday and tomorrow will be the first day she felt the side effect.
Again, we hope nothing serious cause actually the 2nd chemotherapy was better than the 1st one. Therefore we hope by experiencing it twice, we could manage the side effect from home.

My Mom 2nd Chemotherapy

Last Friday - 4th January2013, my mom got her 2nd Chemotheraphy.
The list of drug who got into my mom blood vessel similar with the 1st one, except she need extra eprex for inducing the red blood.
Brexel 150mg
Rexta 120mg
Paloxi
Leukokine
Eprex 40000iu.

What make me wondering, the price increase!.
Since daddy who manage to order and paid the drug, he didn't realize it until I told him.
We still need to verify it, whether there is a wrong price given to us.

Ooo, If you stayed in Indonesia, we could check of Chemotheraphy drug price through:
Yayasan Kanker Indonesia
YKI Sam Ratulangi Phone: +62 21 315 2603, Fax:+62 21 310 8170, ykipusat@gmail.com.
You could buy the drug there, but you need to have original receipt from your doctor.
Government Hospital like RSCM could let you borrowed the drug from outside. You can compare the pricing first.

For me, I have compared it for the 1st Chemo, and the different was only a little, that's why I ordered it though someone suggested by the doctor.
But for the 2nd Chemo, the price going higher more than I calculated.

Anyway, that just some information to share :).

Ohh, my mom condition was dizzy now. Hope she could get through the first week without anything serious.

A Christmas Gift

A Christmas Gift for us is when we know that our mother could going home as our wish ^^.

Actually, we were so sure the day before that our mom will going home on Christmas day.
But when on my duty time to take care of my mom, suddenly the nurse came in and let me know that my mom should get a blood transfusion, due to her Hemoglobin was only 8.5 - while normal 11.5. (when the first day hospitalized, the Hb was only 9.5)
First reaction, I saw uncomfortable face of my mom, then I reject the blood transfusion.
Ok, the nurse was not good on communicating this. She made my mom afraid than calm her down.
I tried to think hard what the other good idea, then I asked the nurse to called doctor, is there any other treatment for this low Hb.
Doctor refuse to gave a vitamin, cause my mom iron n friend was good, the only thing, the red blood cell was down cause the chemo side effect, then the doctor said to gave an Injection of Eprex 40000iu (another expensive item).
My mom clinical condition was good at that time, no dizzy, could walk by her self, etc, the only thing that brother, she couldn't sleep the night before cause a bad dream and on early morning the nurse took a blood test. Beside that, during the stay, we forgot to bring a beetroot juice to increase the production of red blood cell. So lacking of food induce the RBC, plus lacking of sleep, probably make my mom Hb going down.
Ok, we took the injection instead of the blood infusion, considering which the comfortable way for my mom.

I was told that doctor agree to let my mom going home tomorrow.
So without any other blood test required, my mom going home with us.

Anyway, the blood test data might be helpful for us to taking any action, but we shall considering the clinical condition of the patient what might be the best and comfortable way to execute the treatment. That what I learn so far.

Merry  Christmas All ^^/

My Mom 1st Chemotherapy - the 1st Week

A first week of chemotherapy update:

Day 1 - almost 12 hours spent on the hospital

Day 2 - look like a wonder woman, could do the cook, etc. I wish my mom keep her strength for the side effect later on.
Drug: Celebrex 1 a day, Antibiotic (left from the chemo port operation)

Day 3 - Yup, the side effect started. Feeling week, and on the night, my mom felt a Muscle and Nerve pain. Still eating well.
Drug: Took anti nausea in the morning, Celebrex, and Antibiotic.

Day 4 - the muscle and nerve pain keep on going all day long. But my mom keep positive, she always done her simple exercise activity, and having a sun bathing for a while in the morning.
Drug: Anti nausea and Celebrex
! we change her food plan, and my mom sleep without air conditioner.

Day 5 - the pain slowing down now. I asked my mom to took a calcium supplement as I'm afraid she was lacking of calcium due to the vegan eating way.
Drug: Anti nausea and Celebrex
! I'm noticing that after taking one of the chemo drug - Rexta, my mom shall be stay out from cold thing.

Then, Unexpected side effect occurs.
Feeling full of Gas, Cramp, diarrhea, lower abdominal pain, suddenly came.


From chemocare.com:
Chemotherapy may also alter the normal bacterial flora that is present in the intestines. This can affect digestion and cause abdominal pain, cramping or flatulence (gas).

I always monitor my mom bowel movement and she said that only twice a day which on my mind that normal. But what I saw this afternoon after I took a nap, really not normal at all. She felt hurt.
Short message to the doctor and being given a additional drug recipe
-> Inpepsa 3*15ml
-> Buscopan 3*1 (contains 500mg paracetamol)

Day 6 - The cramp, diarrhea, lower abdominal pain keep going all the night.
Short message to the doctor and another additional medicine:
-> Immodium 2tablet each time (anti diarrhea)

Took one time and relieve the diarrhea symptom. However, the lower abdominal/stomach pain keep going.
Ok we pray may this pain just happen till tomorrow.
The worse thing about this lower abdominal/stomach pain, is because everytime it's happen, my mom felt she want to go the toilet and sit for around 20-30minutes for doing some bowel (the stool has a mucus) and till the pain go away.

Day 7 - Nothing change with the lower stomach pain.
Short message to the doctor and add one more celebrex.
You can use this Celebrex up to 400mg a day - 2 tablet.
I gave my mom in the morning and on the noon.
During the noon time, when she awake, she suddenly said all the pain goes away. She can still smile and we took a picture of her with Josh wearing a deer headcraft - ready for Christmas.

Heeee.... within half an hour, she complain the pain coming back.

Ok, this really worse, I gave her buscopan on the midnight, nothing change. Every hour she awake and go to the toilet and wait till the pain go away. I seeing the intensity of going to the toilet increasing.

Day 8, 21 December 2012 - At 5am in the morning my mom drink another dose of Celebrex. But seem the pain getting back.
See you can only took two tablet a day, but one tablet give a relief only for two hours, don't it seem the drug didn't work at all?
My mom couldn't sleep all the night, make her tired and suffer.
We called the doctor and decide to took my mom to Hospital.
! Good thing, my mom still force herself to eat. Only she said she tired and lack of sleep can make her tired to eat also, I really think being hospitalized is the best solution now.

At the hospital, they gave her an infusion of vitamin, paracetamol, etc. According to my sista, it's giving a relief of the pain.
Hey.... seem the pill drug that my mom consume at home can't be absorb well cause changes of the flora in my mom intestine imbalance.
Anyway, still wait for the doctor to diagnose.
Hope nothing serious.

My Mom 1st Chemotherapy - at RSCM

13-12-2012 was the date when my mom has her 1st chemotherapy at RSCM.

The drugs was:
Rexta 150mg
Brexel 120mg
Paloxi (for anti nausea)
Leukokine (for increasing the leucocyte - white blood cell).
Price? Definitely much more expensive than a gold - you name it!. But that still moderate, I heard another name of drug which much much more expensive.
(browse mims for detail of drug information, but you need to sign up first)

We arrived at 9am, but since we must wait for the protocol, then I guess the chemo start at 11am.

My mom was accompanied by Calvin n my lil sista.
Me and josh stayed at home, cause Hospital is not a good place for children and he can't stay quiet also.

Oh, we shall finish all the administration (the payment also) before, it's a rule from the hospital.
Compare to the private hospital, we only need to put a deposit (forget how many percent from total expense) before treatment.
For the next time we shall finished the administration a day before so the chemo could start right away when we arrived since they get the protocol in hand.

How long?
6 hours for Rexta and Brexel.
Before chemo they inject the paloxi and after chemo they inject the leukokin.
Why took so long? They explained that this was my mom first chemo, therefore they slowly put in the drug, so when the allergic reaction show up, they could took an action.

Mom's body reaction?
Pee a lot. Poo a lot also, happen when my mom drink a vegetable juice and coconut water. Therefore I gave her a banana for the night meal including the 20gram whey protein drink.
For the first day, she haven't felt any nausea and that's good.

Doctor informed me that my mom will feel the drug effect after 2-3 days. Let see how's my mom condition.
Meanwhile, we keep on our food plan and hope to keep the nausea away.
We also stop the herbal for a while, except the curcumin (kunyit, kencur and temulawak) and still consume the whey protein.

Thanks God for today, we couldn't ask more.
We just pray may God give us strength to walk upon this condition.