Josh 2.5 Year Old - 2nd Quarter

Lot's of stories about our lil Josh.

In summary, he grown up lot!. He more independent than I thought. Understanding yet rebellious, Passionate yet frigid during day by day interaction with me.
Somehow I felt Josh upset with me. I'm sorry dear Josh, your mother still learn to became a good child, wife and mother and still far from perfect, did lot mistake and need to keep learning.

So here bit update of Josh action as far as I could remember ^^.

Admire him self:
Seeing his own video and starting to comment everything that he saw -> the bird, the water, bla bla bla...

Shy:
He like to run nakedly on our house. It hard to have him wear his cloths once he run away.
Then I said to him, let me take your picture naked, will you?
Ehhh, he suddenly came to me and start to wore his cloths.

Imitating:
One night he saw his daddy cut an over carpet rope. The day after, he took a scissors on the table, and when I saw it, he cut the carpet like a gardener cut the grass. Argggggg..........
(oo, Josh familiar with the scissors during our activity time and he did understand the dangerous of scissors).

He spill the water into the floor. I bring a floor mop and let him knew that he shall clean it.
Ehhh,.. he bring the mop away, when I saw it, he did clean the wet table.

Favorite thing to do:
Guess what? -> Brush his teeth!
Somehow he refuse whenever I asked him to clean him self, but when I said "Let brush your teeth"....
He arrived faster than me!.

Doing House hold cores:
Help me to wash the dishes. Love the water and bubble.
Yes, it took a longer time to finish the task, and somehow I felt bothered with him around me when I need to do it fast, but I came to think, If I didn't teach him, who will?

Could help me to put the dirty cloth into basket or washing machine, but he barely want to clean his toys. *sigh*. For this one, usually I make a game, then asked him to took all his toys back to playing room.

Cutie Josh:
When he want something, he will say "satu ajah yah, satu ajah yah - just one yah, just one yah". When he asked for the second one, he will say the similar word "satu ajah yah, satu ajah ya - just one yah".
My dear Josh, if mama keep giving you "satu ajah yah", it's means alot at the end :p


I never knew where he learn this, but he like to stand on the fence and let him head out, and shouting "Sate, satu ajah yah, sate satu ajah yah"...  Sate -skewered pieces of meat roasted over coals (xamux.com).

He barely want me to took a picture of him. But whenever we all took a picture with timer, he start to action too.


Good thing about Josh:
When he played on the playground, I saw he could wait on line. While most of other kids didn't want to wait. Hey dear, keep do the good thing okay.

Preference:
When he want to sleep, he prefer me to sleep with him (he said: mama ajah yah) -> Why? Cause he could request a song from me ^^ and he followed it.
While morning time, he prefer with his dad - may be cause he saw mommy didn't awake when he called :p

Ownership:
fuih..... i think everyday I heard a word like this "Ini mama punya, Ini papa punya, Ini auntie punya, Ini koko punya, Ini Josh josh punya, ........." - (this belong to mama, this belong to papa... etc). If you are not a person who own the stuff, he didn't allow you to take it.

Ability to tell me the activity on the book.
When we read a book, I point the picture, he will tell me shortly what the kid's do.
lagi berdoa, lagi duduk, lagi coret coret (kalo lihat orang pegang pensil warna - upss mesti diajarin lagi gambar kali yak), lagi makan, ketawa, etc....


November:

Suka heboh sendiri.
Untungnya masih mau diajak family kiss n hug.

SEdihnya, dia suka ajak pho pho main, tapi pho pho lagi sakit..
Dia naik ke tangga, sambil panggil pho pho, pho pho... biasanya pho pho nyahut dan cari dia.. kali ini pho pho tiduran di kamar..


November 28
Josh lagi main sama mama, trus lihat tempe orek telah siap, lgsg cemal cemil tempe orek, dipanggil-panggil sama grandma nya, tak disaut, duduk ajah dimeja makan sambil makan tempe :p.

Novembr 27
Josh dirumah sakit. tiba tiba teriak dari kamar mandi, ternyata tangannya sempat ketekan pintu dan dia ngk bisa keluar, akhirnya nangis deh minta tolong. Sesudah itu, tak ada lagi acara masuk ke kamar mandi sendirian. Diomongin kadang susah, mesti pengalaman sendiri.

Josh dilema - diajak papa pergi tak mau. tapi pas papanya pergi, nangis sambil tutup mukanya, akhirnya balik kejar kejar papanya lagi.

Selama Pho-pho sakit, surprisingly, tidak ada cubitan lagi kepada pho pho.
Dia paham harus sayang pho-phonya.
Mama: Josh, pho pho kenapa?
Josh: Pho pho sakit
MAma: pho pho ke dokter siapa?
Josh: Dokter sigit yah
Bisa ajah si Josh diajak komunikasi sekarang.

Pagi-pagi Josh bangun, pas mama lagi buka kulkas mau buat jus, si Josh lgsg ambil bungkusan permen mama.
Tapi dia ngk minta ke mama, dia lari ke kamar pho-pho, kasih ke pho-pho trus cium pho-pho nya... wallah.. pinter amat yak, ambil hati dulu sebelum minta dibukain permen.

Bisa bilang no-candy, but when he saw it, coulnd't get rid of it.,


November 16,
Mau egh egh...
Yah sudah, sini sama mama ke wc.
Josh: ngak, sama papa ajah. Sambil jalan ke papa.
Sudah bisa menentukan preferensi dia dengan siapa sesuai dengan kebiasaan.

November 15,
We did have a short conversation:
Josh mau makan?
Makan.
Makan apa?
Makan nasi.
sama apa?
Telur.
Trus?
sayur yah.
Trus?
hmmmm... bingung si josh mau makan apa lagi.

Josh saat berenang pertama kali terbalik, kepala badan dibawah sedangkan kaki diatas.
Tapi untungnya pas dia dibalik, dia tidak kaget. Dia cuma bilang "Keluar yah ban nya - maksudnya dia keluar dari ban"
Berendam dengan berbagai gaya, sambil terlentang, sambil berleha di ban trus ambil pasir buat main.

Afternoon time:
Josh: where is papa?
Me: Papa sleep on the room.
Josh run to the room and papa carry Josh to the bed
Josh: Nooo, papa back to sleep, and he run out, left his dad to sleep again.

To the book store, we let him choose want he want.
But he someone not insisting to one stuff, if we change it with a better one, so far he could accept it.
Will be very happy when we paid the stuff.

When mommy having a hair cut.
Pa: JOsh let's took a walk, daddy feel sleepy.
Josh: Noo, I want to be with mommy.
Ma: Pa, your child look faithful to me than you. ^^

November 14,
He could jump from the pool side and he have fun with it.

November 10
Josh kept calling me "mama elina" when he learn to remember my name.


Oktober:

Love Hi Five - kid's series

While on the phone, I asked Josh, how to loving  papa. He did it by caring the phone.

Showing of family picture to Josh. Instead teach him about calling uncle and auntie, I move forward to teach the name of each person.

Mama: Josh, this is Uncle william

Josh: uncle wilam,

Then I continue till 3 person.

I asked him again, Who is this JOsh (point to uncle)

Josh: Uncle.

Mama: what is his name?

Josh: Uncle Josh Josh :p (Ok, Josh, he is definitely your uncle.)
p.s. But now he could remember name of the person correctly.

Mama: JOsh please open the window
Josh go directly to the window and open it.
While he did it correctly, I praise him "Wow, you doing great".
Josh will gave you his shyly smile :p

Last time I left Josh with his grandpa and grandma. They bring him along when they sent Adison home to Kelapa Gading. That both brother cry when they need to say goodbye. Grandpa told us that Josh cry a long the way back home, till he saw a Oil Station. Suddenly he stop crying, and point it and told Grandpa "Pom bensin yah". GRandpa and GRandma laugh together as that's so unpredictable.

A Christmas Gift

A Christmas Gift for us is when we know that our mother could going home as our wish ^^.

Actually, we were so sure the day before that our mom will going home on Christmas day.
But when on my duty time to take care of my mom, suddenly the nurse came in and let me know that my mom should get a blood transfusion, due to her Hemoglobin was only 8.5 - while normal 11.5. (when the first day hospitalized, the Hb was only 9.5)
First reaction, I saw uncomfortable face of my mom, then I reject the blood transfusion.
Ok, the nurse was not good on communicating this. She made my mom afraid than calm her down.
I tried to think hard what the other good idea, then I asked the nurse to called doctor, is there any other treatment for this low Hb.
Doctor refuse to gave a vitamin, cause my mom iron n friend was good, the only thing, the red blood cell was down cause the chemo side effect, then the doctor said to gave an Injection of Eprex 40000iu (another expensive item).
My mom clinical condition was good at that time, no dizzy, could walk by her self, etc, the only thing that brother, she couldn't sleep the night before cause a bad dream and on early morning the nurse took a blood test. Beside that, during the stay, we forgot to bring a beetroot juice to increase the production of red blood cell. So lacking of food induce the RBC, plus lacking of sleep, probably make my mom Hb going down.
Ok, we took the injection instead of the blood infusion, considering which the comfortable way for my mom.

I was told that doctor agree to let my mom going home tomorrow.
So without any other blood test required, my mom going home with us.

Anyway, the blood test data might be helpful for us to taking any action, but we shall considering the clinical condition of the patient what might be the best and comfortable way to execute the treatment. That what I learn so far.

Merry  Christmas All ^^/

My Mom 1st Chemotherapy - the 1st Week

A first week of chemotherapy update:

Day 1 - almost 12 hours spent on the hospital

Day 2 - look like a wonder woman, could do the cook, etc. I wish my mom keep her strength for the side effect later on.
Drug: Celebrex 1 a day, Antibiotic (left from the chemo port operation)

Day 3 - Yup, the side effect started. Feeling week, and on the night, my mom felt a Muscle and Nerve pain. Still eating well.
Drug: Took anti nausea in the morning, Celebrex, and Antibiotic.

Day 4 - the muscle and nerve pain keep on going all day long. But my mom keep positive, she always done her simple exercise activity, and having a sun bathing for a while in the morning.
Drug: Anti nausea and Celebrex
! we change her food plan, and my mom sleep without air conditioner.

Day 5 - the pain slowing down now. I asked my mom to took a calcium supplement as I'm afraid she was lacking of calcium due to the vegan eating way.
Drug: Anti nausea and Celebrex
! I'm noticing that after taking one of the chemo drug - Rexta, my mom shall be stay out from cold thing.

Then, Unexpected side effect occurs.
Feeling full of Gas, Cramp, diarrhea, lower abdominal pain, suddenly came.


From chemocare.com:
Chemotherapy may also alter the normal bacterial flora that is present in the intestines. This can affect digestion and cause abdominal pain, cramping or flatulence (gas).

I always monitor my mom bowel movement and she said that only twice a day which on my mind that normal. But what I saw this afternoon after I took a nap, really not normal at all. She felt hurt.
Short message to the doctor and being given a additional drug recipe
-> Inpepsa 3*15ml
-> Buscopan 3*1 (contains 500mg paracetamol)

Day 6 - The cramp, diarrhea, lower abdominal pain keep going all the night.
Short message to the doctor and another additional medicine:
-> Immodium 2tablet each time (anti diarrhea)

Took one time and relieve the diarrhea symptom. However, the lower abdominal/stomach pain keep going.
Ok we pray may this pain just happen till tomorrow.
The worse thing about this lower abdominal/stomach pain, is because everytime it's happen, my mom felt she want to go the toilet and sit for around 20-30minutes for doing some bowel (the stool has a mucus) and till the pain go away.

Day 7 - Nothing change with the lower stomach pain.
Short message to the doctor and add one more celebrex.
You can use this Celebrex up to 400mg a day - 2 tablet.
I gave my mom in the morning and on the noon.
During the noon time, when she awake, she suddenly said all the pain goes away. She can still smile and we took a picture of her with Josh wearing a deer headcraft - ready for Christmas.

Heeee.... within half an hour, she complain the pain coming back.

Ok, this really worse, I gave her buscopan on the midnight, nothing change. Every hour she awake and go to the toilet and wait till the pain go away. I seeing the intensity of going to the toilet increasing.

Day 8, 21 December 2012 - At 5am in the morning my mom drink another dose of Celebrex. But seem the pain getting back.
See you can only took two tablet a day, but one tablet give a relief only for two hours, don't it seem the drug didn't work at all?
My mom couldn't sleep all the night, make her tired and suffer.
We called the doctor and decide to took my mom to Hospital.
! Good thing, my mom still force herself to eat. Only she said she tired and lack of sleep can make her tired to eat also, I really think being hospitalized is the best solution now.

At the hospital, they gave her an infusion of vitamin, paracetamol, etc. According to my sista, it's giving a relief of the pain.
Hey.... seem the pill drug that my mom consume at home can't be absorb well cause changes of the flora in my mom intestine imbalance.
Anyway, still wait for the doctor to diagnose.
Hope nothing serious.

Josh's Cousin - Jade Birthday

On 1st December, we were glad we could join Jade 1st birthday party ^^.

The Birthday party was Great!

Birthday Invitation card, Decoration, Children Game and a bit magic, the Food, all Great! 

Oooo.. and the party designer -> Jade's mommy - Tuillie Things.

I like the idea of having a 1st birthday party in home.

For a first year kid's, is really matter for feeling comfortable with the place, where the Home was the perfect choice to choose.

Yes, lot of work to be done, but I feel it's worth for seeing your kid's enjoy their birthday party.

(I didn't took a lot of picture, but hope the party designer update the picture soon.)

Too cute ^^.

Thanks Jade for inviting us.

Birthday Clown. Nowdays, the clown also improving, speak English.

Happy face, lot's of sweet ^^

Josh trying to blow the candle ^^

Josh's and Jade's with mom and dad.
Josh: Urgg ini kan aku punya jade.
Jade: tapi aku juga mau. Sambil tatap menatap tak rela ^^.

The Bright Blue Sky

On Last Saturday, 15th December, I was amazed by the bright blue sky.

Never seen this on Jakarta.

This was my first time to saw it on my new home.

Sitting on the veranda, glaze to the bright blue sky.

Feeling the fresh air, look at the beautiful butterfly.

What an amazing day.

Josh hide from the bright sun ^^.

Christmas Cup Cake - A present

We got a present - a set of Christmas Cup Cake on last Sunday.
My friend, Eika made that for us.
Hmmmm, love it and within an hours that cake gone into my stomach :p

Hmmm which one yah?

Sunday School - Christmas Time

On this Sunday, Josh's Sunday School celebrating the Christmas.

The Story about Jesus came to this world and died on Calvary.

I love to see Josh's face who look curious when listen to the story. 

I hope that Josh's faith could grow day by day and believe on his heart that Jesus is the True Savior.

However, during the story telling, an older boy sit next to Josh, put his hand on Josh's chair.

While my lil Josh who now's very strict about ownership, feel disturb by that boy action. He then shift that boy's hand. But that older boy keep repeat the same action.

Afraid that Josh might annoy the other kid's, I took Josh to sit with me.

Not a few minute, Josh went to his chair, and took his chair away *fuih*

Seem Josh didn't like that boy.

Then, it's came the time a praises "Selamat-Selamat Datang" which ended with "Salam-Salam". I teach Josh to shake hand with other when sing "Salam-salam" in home.

Ehhhhh, Josh came to that boy and asked him to shake hand.

From that simple act, after the activity done, that boy came to Josh and started to playing with Josh.

And yeah, you can guess, after the Sunday school, both of them run happily all over the room.

Dear My lil Josh,

When we grow older, somehow we grow harder to forgive.

Therefore, Keep remember a children heart, when you can quickly forget and forgive uncomfortable thing that someone do to you.

Mom's Birthday - 16 Dec 2012

Today we celebrating our mom's 55th Birthday.
As my mom couldn't eat birthday cake which contain lot of sugar and egg, then I tried to make something to replace the birthday cake.

Tradaaaa, I make a fruit jelly pudding - Melon as the base and put a kiwi and small piece melon as the filling. No added sugar or color.
We simply sing a birthday song and took a picture as my bro and sista coming together.

Josh kept starring at the pudding.

Josh trying to make a Peace sign ^^.

Now my lil Josh know how to do a silly act when picture was taken :p

P.S. You see the red thing on the glass? That a juice made from Beetroot, carrot, apple, spinach, and lil bit of cucumber. Feeling so fresh after drink a glass of that juice ^^/.

My mom enjoy the pudding and Josh ate a lot of it.

My Mom 1st Chemotherapy - at RSCM

13-12-2012 was the date when my mom has her 1st chemotherapy at RSCM.

The drugs was:
Rexta 150mg
Brexel 120mg
Paloxi (for anti nausea)
Leukokine (for increasing the leucocyte - white blood cell).
Price? Definitely much more expensive than a gold - you name it!. But that still moderate, I heard another name of drug which much much more expensive.
(browse mims for detail of drug information, but you need to sign up first)

We arrived at 9am, but since we must wait for the protocol, then I guess the chemo start at 11am.

My mom was accompanied by Calvin n my lil sista.
Me and josh stayed at home, cause Hospital is not a good place for children and he can't stay quiet also.

Oh, we shall finish all the administration (the payment also) before, it's a rule from the hospital.
Compare to the private hospital, we only need to put a deposit (forget how many percent from total expense) before treatment.
For the next time we shall finished the administration a day before so the chemo could start right away when we arrived since they get the protocol in hand.

How long?
6 hours for Rexta and Brexel.
Before chemo they inject the paloxi and after chemo they inject the leukokin.
Why took so long? They explained that this was my mom first chemo, therefore they slowly put in the drug, so when the allergic reaction show up, they could took an action.

Mom's body reaction?
Pee a lot. Poo a lot also, happen when my mom drink a vegetable juice and coconut water. Therefore I gave her a banana for the night meal including the 20gram whey protein drink.
For the first day, she haven't felt any nausea and that's good.

Doctor informed me that my mom will feel the drug effect after 2-3 days. Let see how's my mom condition.
Meanwhile, we keep on our food plan and hope to keep the nausea away.
We also stop the herbal for a while, except the curcumin (kunyit, kencur and temulawak) and still consume the whey protein.

Thanks God for today, we couldn't ask more.
We just pray may God give us strength to walk upon this condition.

Chemo Port - Done at RSCM!

Kita memutuskan untuk memasang chemo Port berdasarkan diskusi dengan dokter onkologi. Mempertimbangkan pembuluh darah mama yang relatif kecil, alhasil untuk menghindarkan rusaknya pembuluh darah akibat chemo, maka dipasanglah chemo port - Celsite produksi B-Brown.
Pemasangan dan penggunaan alat ini bukannya tanpa resiko, oleh sebab itu dalam memilih bagaimana cara perlakuan chemo, sebaiknya mempertimbangkan hasil konsultasi dokter + bacaan artikel + kondisi pasien.

Pemasangan Celsite dilaksanakan di ODC (One Day Care) RSCM.
Operasi dimulai dari jam 13.00 sampai 14.30. Sadar sekitar jam 15.30. Terjadi rembesan darah, sehingga perlu tambahan sedikit jahitan. Siap pulang sekitar jam 17.00

Ok, sekarang berbicara kesan terhadap RSCM yang notabene adalah rumah sakit pemerintah, boleh dikatakan semakin baik.
Pra Operasi:
Di klinik ODC RSCM diterima dengan senyum ramah (mmm kayaknya kesan awalnya RS pemerintah orangnya jutek-jutek, tapi ternyata tidak sedemikian), diberikan informasi yang jelas. Beberapa kali bertanya pun dijawab dengan baik. Walau ruang tunggu tak berAC dan bangku duduk yang seadanya, tetapi jika dilayani dengan senyum siapapun kurasa akan merasa lebih nyaman.
Pasca Operasi:
Mama diistirahatkan diruang pemulihan. Saat itu terjadi rembesan darah, namun dengan tanggap para perawat diruang pemulihan itu mengganti dan memanggil dokter. Setelah diperiksa, diperlukan tambahan jahitan kembali. Saya pribadi merasa para perawat itu ramah dan full of fun ditengah kelelahan yang ada dan tetap melaksanakan tugasnya.
Seinformasi yang kudapatkan dari brosur bahwa hanya ada dua ruang operasi untuk ODC service ini. Dan biasanya berakhir sampai jam 15.30. Tetapi karena ada saja pasien-pasien yang mungkin terjadi seperti mama, mereka biasa menunggu sampai tuntas.
Dari cara perawat menunggu mama, menolong mama, saya merasa para perawat disana itu sabar-sabar.
(hmm semestinya memang perawat sabar yah, tapi koq kayaknya saya sudah terlalu sering mendengar bahwa seringkali di rs pemerintah perawat kurang sabar, jadi rasanya amazing banget kalo ada perawat yang sabar :p)

Sekarang berlanjut ke harga:
Harga Celsite sendiri sekitar 6jtan. Total operasi +/- 18jt di ODC RSCM.
Dibandingkan dengan RSCM Kencana (swastanya RSCM), yah jelas di ODC RSCM bisa lebih murah sedikit, tapi tak jauh (tak seperti bayangan saya, kecuali anda pemegang kartu jamkesmas yah!).

Hanya saja, yang cukup menarik, sempat membandingkan harga yang diberikan oleh Rumah sakit swasta di Penang, ternyata harga yang diberikan lebih murah (tetapi mempertimbangkan transport dsb, yah jatuh-jatuhnya jadi sama).
Sempat berpikir, dengan biaya yang dikeluarkan sama, di Jakarta saya hanya bisa berobat ke rumah sakit pemerintah, sedangkan di Penang (negara tetangga kita) saya sudah berobat di rumah sakit swasta.
Tidak mengherankan sekali jika banyak sekali orang menganjurkan mama untuk berobat kesana, salah satunya pertimbangan harga yang murah.

Next, soal Obat di Farmasi RSCM.
Kita diresepkan obat dan diminta untuk segera ditebus supaya bisa diminum oleh mama, salah satunya antibiotik.
Datanglah Calvin ke Farmasi RSCM, sesudah menunggu 30menit, tak ada satupun petugas yang melayani, heloooo...... mau bertanya pun tidak bisa, wong tak ada batang hidungnya.
Akhirnya Calvin pindah ke Farmasi RSCM Kencana, heyyyy within 15 minute semua obat sudah di tangan, dengan kemasan yang baik pula, walaupun harga obat totalnya cuman 11ribu.
So so so, tampaknya kalo nanti-nanti ada kebutuhan farmasi, mungkin lebih baik lgsg ke RSCM Kencana.

Oiya, mama terdaftar di RSCM Kencana, tetapi kami dapat memilih untuk dilakukan tindakan di RSCM Kencana atau RSCM Pusat, termasuk untuk dirawat inap di mana. Karena RSCM Kencana hanya menyediakan kamar VIP.

Anyway, sekilas soal pemasangan Celsite dan sedikit review terhadap RSCM.

Update: Esok harinya, pagi-pagi kami ditelpon dari pihak RSCM ditanya bagaimana kondisi mama. Another service yang dirasa sangat membantu.

Swimming Time

We manage to bring Josh out for swimming for him to have his cheerful time with his big brother Adison.

on Sunday 2nd December, a short one but at least I could see his smile, and his act on the swimming pool - relaxing on his swim ring and of course his jumping action ^^/.

He count before jump "six, seven, eight, nine, and jump" - don't know why he didn't count from number one.

Dear Josh: you are such a good son, and we hope you understand that during this cloudy time we hardly to take you out like usual. But mom and dad will make sure that we will have a joyful heart wherever we are.

Love you Josh!

Food for Mom

My mom just point out that she want to do the chemo.
About the pro and cons of chemo, yes we did know it. I will share it someday, why.

Actually from my mom going home, I have been keeping my mom eat the healthy food.
After browsing so much website, counseling with the doctor, and other cancer survivor, my mom came into conclusion that she want to change her eating lifestyle.

No meat, no egg, milk, totally vegan.
Eat raw food, vegetable and fruit.
Eat legumes.

Need time to adjust what will be the most convenience way to prepare it and during the chemo that will be more challenging as many website discuss that my mom will lost her appetite.

So far I has offer to my mom:
for protein - the soy bean milk everyday + legumes.
for vegetable - a lot of nice vegetable juice waiting for her.
for carbo - steam of Taro, Pumpkin, Squash, Potato.
for Fruit - many fruit that could still be eaten, priority: papaya!

But if and if she feel has no energy with all above food, then I said to her that I will gave her chicken stock, white egg, to boost the energy also.
What the most important thing during chemo is our body could took a lot of nutrition for regenerate the good cell.

As God has lead our life till now, He will lead us till the end.